I don’t like being the mother of a child with special needs. I am not someone who welcomes the challenges or who is thankful for the challenges my child faces. I love him so much my heart hurts sometimes, but I wish he was a “typical child”.
Now that we’ve gotten that out of the way, let me tell you a little more about me and my family. This post is really meant to introduce myself. I promise to be more fun and witty in weeks following.
Our family consists of me (Kris-Ann), my husband (Ian), a 4 1/2 year old (Max) and 2 1/2 year old (Ben). We also have a 5 1/2 year old English Bulldog (Walter) that I’m pretty sure is harder to take care of than the kids.
When Max was just over 4 months old, he was diagnosed with Epilepsy. He had Infantile Spasms which developed into Partial Atonic Seizures (also known as drop seizures). While his seizures are well controlled now, we are constantly on alert for other types of seizures which we know will come. In addition to Epilepsy, he was diagnosed with a vision impairment (he was blind until he was about 8 months old), and a minor heart defect. All of this, in addition to a recent diagnosis of ADHD, has contributed to many developmental delays primarily affecting his speech, fine motor and gross motor skills.
I know that if I had a place to go for support when he was originally diagnosed, I would be in a much better emotional place now. Even though it was only a few years ago, it was harder to find blogs or message boards about special needs. I wasn’t on Twitter yet and no one I knew had kids with special needs. Couple that with there being zero resources for working parents of kids with special needs and you have a very lonely, frightening experience.
I’m thrilled to be joining the team of bloggers on this site and really look forward to connecting with others in similar situations. I hope to connect families and create that proverbial village it takes to raise children. I am by no means an expert on being the working mom of a special needs child and will likely lean on all of you for support more often than not. Some things I talk about will be specific special needs challenges, but I’m sure most will be shared by all working parents. I hope you’ll join me each week.