Author: Kate Anderson

What They Didn’t Teach You in School About Health Insurance

We’ve known for a while that we needed to get Gavin a new adaptive stander. While we have one on loan from the N.E.A.T. Market, the issue is that it’s a little too big and he doesn’t feel comfortable in it because there’s no back to it (the stander makes him lean forward). Problem is when he tones, he does so backwards, where there is very little support to make him feel safe. Knowing the process to get the new stander would happen after my company changed health insurance companies; I started asking questions weeks prior to ensure we would have benefits for coverage. Without getting into all the details, I was assured that it WOULD be a covered benefit. I checked my benefits summary once enrolled to verify that the stander was INDEED a covered benefit under “Durable Medical Equipment” and was not listed with any “exclusions”. Based on all that information and when my insurance changed over we took Gavin to Shriner’s Hospital to be fitted for a new adaptive stander (June). (Quick side note – an adaptive stander is just what it sounds like. An adaptive stander promotes bone strength by having the user bear weight on his/her legs, it also helps with digestion, circulation, and breathing. In Gavin’s case it would also help with trunk and head control and would be the stepping stone to...

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Best. Update. Ever.

On June 23 I wrote about our search for a new daycare and all the concerns, issues and complications that accompanied that search. As we get ready to head on vacation and summer camp at daycare winds down, I thought I would steal a few minutes to look back at how far we’ve come. First, that 8 weeks have passed is absolutely ridiculous to me!! Where did the summer go!?!?! By the time we get back from vacation, summer camp will have transitioned to school and my three little ones will be in full on learning mode (not to say that they weren’t learning over the summer but this will be more “school rigid” than “summer fun” learning). I am so happy to report that all three kids made an amazing transition to their new daycare. I’m not going to lie – it was a tough 8 weeks. I knew Bailey and Spencer, for the most part, would be fine. They had their good days and not so good days. We finally made it through two full weeks with no attempts or actual bites from Spencer (so we get to say good bye to his shadow!) and Bailey LOVES her new friends, teachers and the fact that she got to go swimming every day. So my concerns really weren’t for them. The big concerns were for Gavin. Will he...

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Watch Out Vacation, Here We Come!

I have two confessions to make. First, I love vacation. Second, I am terrified of vacation. Let me explain. For as long as my husband and I have been together – 15 years – we have made it a point to go on a summer vacation. Most years we went to a private lake in the middle of nowhere VT (which was super awesome when we lived in NJ and worked in NYC). We could completely unplug (not that there was much cell service anyway) and totally relax. After our daughter was born we went on vacation to Maine with my family. As first time parents it was nice to have several other adults around to help out, plus it allowed us to sneak away for a little while. The year I was pregnant with the boys was the last time we went on vacation – that was the summer of 2013. With all the complications of that pregnancy and the hectic year that followed with Gavin and all his doctor’s appointments and tests we didn’t feel comfortable going on vacation last year. This year I decided “to hell with that! We’re going on vacation!” Now that vacation is a mere two weeks away, I’m getting very nervous – ok if I’m being honest here, more than a little nervous. Here’s the thing. I’m a planner, straight out of...

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Sorry, I’m not sorry

As a special needs parent I’ve come to realize a great many things about people (that includes friends, family, neighbors, and those I don’t know well) and to be honest, not all of these realizations have been pleasant. Luckily the unpleasant realizations have been few and far between. For example, we have found out that there were people in our lives that we thought were friends but ultimately couldn’t handle the idea of being friends with a family that had a special needs kid. For the life of me, I can’t understand why, but at the end of the day, in my mind, no real loss there. But the biggest realization comes from people just not knowing how to react/respond when they find out we have a special needs child. When our families found out that Gavin was officially diagnosed with CP there was some shock. There were (and still are) A LOT of questions – in all honesty more than we were ready or able to answer at the time. We were overwhelmed and unsure of the road ahead of us and doctors couldn’t give us anything more than “we have to wait and see what he does.”  But there was an outpouring of love and support so we continued on our way. When friends and co-workers found out – the vast majority found out through a blog...

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An Open Letter

To the Parent of the child my son is targeting with biting- All I can say is that I’m sorry. I don’t know why my son is “targeting” your daughter and biting her. From my understanding they are buddies and play well together – until he decides to take it that one step further and ruin the fun. I can only imagine what you think of us as parents. How could we possibly allow this type of behavior? Well please know that we don’t. We do not tolerate biting, hitting, name calling, spitting, etc. in our home. Not that this will ease your mind at all but my husband and I have been where you are. I know how it feels to get “that” call while at work or to see the bite mark upon pickup.  At our old daycare our (now 4 year old) daughter was the target of not one, but two biters which went on for almost 2 years. It wasn’t an everyday occurrence but there were days when she’d have 2-3 incident reports from one of the kids biting her. We were told “it’s just a phase” or “he’s having trouble at home”. To be honest I didn’t care I just wanted the biting to stop. Many times it felt as if I was the only one trying to come up with solutions to stop...

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