Who is Ella, you ask? Ella is not a storybook character or from a child’s television show, even though she has the cutest name that would be perfect in a storybook. Ella is a beautiful six-year-old girl; the sister of my twins’ preschool friend, and the daughter of one of the funniest ladies I know. Like most girls her age, she goes to kindergarten and loves things like Barbies, Shopkins and her dog, Stanley. She is a pretty normal 6YO except for one thing: Ella suffers from a rare and life-threatening form of epilepsy called Dravet Syndrome and her life is in reality pretty different from that of a normal 6YO.