Riding through the Rough Patches

Oct 14, 2014 by

2014-09-27 16.14.00

We’re going through a couple of rough patches with both kids.  They’re both having a tough time adjusting to their new grade levels.  Our daughter’s behavioral outbursts are escalating.  She’s spent a lot of time with substitutes and we just learned that today her teacher will be switched due to another teacher’s very untimely transfer to a different school.  Autism, ADD and constant change is now equaling nervous moms every morning when we wave to her on the bus.

Our son is experiencing more anxiety than I’m comfortable with about school, and it’s not about his ability to learn.  He’s an award-winning rule follower (when not at home).  He’s a dynamite kid but the pressure he puts on himself to have flawless behavior in school is intense.

Put these two together and this means more phone calls from the school than I ever wanted in their entire elementary education, a care conference promotion to an early PPT and more bedtime pep-talks than I know how to manage creatively.

My Sage

Jul 29, 2014 by

With a diagnosis of Autism we wondered what we might do to help “treat” you or lessen the “symptoms.”  You showed us with your love of life and your buoyancy through tough moments that you didn’t need changing. We read stories from parents, from adults and teens with Autism, from professionals, and we wondered if we could lessen your pain, since it seems to permeate so many stories we heard.  Your smile and your laughter assured us that you are not their stories, but your own; full of delight, wonder and joy. I wanted to coax you out of your shell as if you were a turtle, and you showed me that you are a lion – r-o-a-r, a ballerina, and a superhero, but a turtle you have never been. 2014-07-20 13.23.29 I wanted to introduce you to life, instead you brought me to mine. On a slow hike through the woods you find the letters “F” and the “Y” in the sticks and leaves you bring me to hold.

Remember to Breathe

Jul 15, 2014 by

School letting out for the summer is magical for a spell.  For a week or so, we don’t care about their 20 minutes of reading.  We survived, they survived.  For a bit, we don’t have to wake at the crack-of-dawn, we can wait until the crack-of-dawn-thirty.  No lunches (until camp and summer school begins), no more homework.  For a quick spell, we all feel accomplished.  “Another year… gone!” (Albus Dumbledore in the Sorcerer’s Stone).

sage big kid bus

This year-end brought particular relief and enthusiasm as our little girl successfully completed kindergarten, in a mainstream classroom, with extra support.  After we watched what Noah went through in Kindergarten we were a bit nervous terrified.  Yet, she made it.

Light it Up Blue

Apr 1, 2014 by

April 2nd is Autism Awareness Day, but I have little to say about Autism.  It’s not that I haven’t been thinking about it.  I even remembered to order the solar-powered blue lights, though at this point I realize I ordered them a bit late for the “solar” part of the “powered” to kick in for the 2nd.  While tomorrow is Autism Awareness Day, today is April Fools’ Day, and often I feel my life is much more comical than serious.  Autism sounds so serious.

Autism Awareness Day

Autism Awareness Day

At times it is truly difficult.  But over the past several days, as I’m getting this blog ready in my head to share with all of you the statistical significance of 1 in 88 (though now CDC theorizes 1 in 68), I just kept catching myself laughing, and sinking in.

A Small Glimpse: April is Autism Awareness Month

Apr 1, 2014 by

cuddle time

April 2nd is World Autism Awareness Day and April is National Autism Awareness Month. As the CDC releases statistics identifying that 1 in 68 children in America are living with Autism, I wanted to offer a small glimpse into our families’ experience. My biggest struggle as the mother of a child with autism was learning to have patience with this ‘diagnosis’. I wanted to get to know everything about our daughter. What her favorite color would be? Or, her favorite food? Would she enjoy puzzles as much as her brother or prefer the blocks that seem to grow exponentially in the toy box? Who would be her first friend at school? Would she ever have friends?

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