I’ve never felt passionate enough about anything to get a tattoo. But this may be it.
Tag: down syndrome
October is Down Syndrome Awareness Month, 31 days in which members of the Down syndrome community focus on awareness, advocacy, inclusion and respect for all individuals with Down syndrome. My daughter was diagnosed a few hours after birth. * * * This is Abby. She’s 7. She’s in second grade. A regular second grade class.
If you’ve spent more than 5 minutes with me around IEP time, you know this process is the bane of my existence. It starts with a fundamental dismay that I must fight for my daughter to have the basic right to an education that my son will be granted without question. But that’s a post
Because then at some level, I’m admitting she is and will always be different.
Despite everything going on in the world, this has been a pretty decent year for me. And if it hasn’t for you, let me share with you the difference and we’ll see if helps you make 2017 a pretty decent one for you. It started with something I’ve been working on professionally. The point is to
My newly minted threenager has historically been a little slow on his expressive language skills. Over the past two weeks or so, though, he’s been eating his vegetables or something (when I’m not looking) because all of a sudden, he won’t. shut. up. And everything he says is an echo of his idol. His big
Every year, it’s hurt a little less. To the point where most of the time, there is no hurt. It’s just life. Our life is slightly more complicated than most but whatever. It’s our normal. Our normal feels so normal that I pause every time someone or something hints it’s not. A couple days back, we
Listen to me. (Err… read me.) It is okay to feel overwhelmed. It is okay to not think about it sometimes. It is okay to think about it all the time. This is something that you have to grow through just as your kid does. It takes time to come to terms with “special needs.” Nothing
A few months back, I was fortunate to attend a panel presentation featuring four locals who are part of the transgender community. Three were transgender individuals and another was the mother of a grown child who had recently begun a transition. Their message was fascinating and here’s why: it’s exactly what I’ve been trying to convey
Right after my girl was born and subsequently diagnosed with Down syndrome, just about the only people we could speak to about it were our parents. Because I couldn’t talk about it without completely losing my shiz. My maternal hormones were on parade and the words just couldn’t leave my mouth without the flood gates