The kids had their holiday concerts at school on Tuesday. The teachers did such a great job coordinating everything and the kids were all so cute as they performed their songs – with props (I think I saw a few budding stars up there as well!) As I watched the different grades transition on and… Read More Thankful for Paras!
I’ve been afraid of this since she was born. There’s a phenomenon in the Down syndrome community – or well, I guess the entire community of the world – where as our kids get older and toddler cuteness wears off, something changes. Not with us. With everyone else. The other kids have learned to speak… Read More When Toddler Cuteness Wears Off: October is Down Syndrome Awareness Month
[Here’s where I’d like to remind everyone – on the off chance that you’d forgotten – that nothing in the world of health insurance makes sense. Not. A. Single. Thing.]… Read More Fighting the Insurance Fight
I’ve never felt passionate enough about anything to get a tattoo. But this may be it.… Read More Solidarity, Mamas! (…in a Tattoo?)
We are heading into one of the busiest and most stressful times of year, adding to the everyday stress of life. My advice (to parents and non-parents) is to make time (even just 15mins) for you. You’ll find you can enjoy the holidays and the people around you a lot more if you’ve taken the time to take care of you (I know, I know – I will too, I promise).… Read More “Me Time” is Mandatory.
You always wonder what your child’s first word is going to be. Mom’s always hoping that “mama” is first, dad’s always hoping “dada” is first – and don’t get me started on the extended relatives! But when your child is non-verbal, the reality is you’ll take anything they can muster to say on any level. … Read More A Child’s First Word
October is Down Syndrome Awareness Month, 31 days in which members of the Down syndrome community focus on awareness, advocacy, inclusion and respect for all individuals with Down syndrome. My daughter was diagnosed a few hours after birth. * * * This is Abby. She’s 7. She’s in second grade. A regular second grade class. … Read More This is Abby. October is Down Syndrome Awareness Month
If you’ve spent more than 5 minutes with me around IEP time, you know this process is the bane of my existence. It starts with a fundamental dismay that I must fight for my daughter to have the basic right to an education that my son will be granted without question. But that’s a post… Read More 4 Suggestions for a Better IEP Meeting
Because then at some level, I’m admitting she is and will always be different.… Read More I Can’t Put My Kid in the Special Olympics
So you know when people build things up so your expectations become huge and then you actually do/visit/see what was built up and it falls REALLY short of expectations? Yeah, well I’m not sure if that’s what happened in this situation or if there were other things at play – or if as I always say, it is what it is.… Read More Expectations Are A Tricky Thing